You know you hear all these wonderful feel good stories about people with disabilities and life threatening illness being so strong and courageous and spreading cheer where ever they go. Well excuse me but I don't feel up to it. I think it is a way of people relieving themselves of guilt "See they are fine they don't need any help". Well I hurt I am tired and I am done worrying about everybody else's feelings.
While I know their intentions are good or they just don't fully understand a disease I barely understand myself, but I sometimes get snippy with friends and family who try to encourage me to get out more.
A few notes:
1. No I cannot go Christmas shopping with you on Dec 23,
2. When you want me to do something, I need at least a few hours notice
3. Some days are great, some days are black
4. Ask me all the questions you want, I want to spread the word about this common disease that is seldom diagnosed. I'll even show you my lumps.
No comments:
Post a Comment